FRIDAY 17 MAY 2019
Put on the red and let the whole world know about Vascular EDS
REDS4VEDS Day is a global campaign that happens on the third Friday of every May to help raise awareness of Vascular Ehlers-Danlos syndrome (vascular EDS), a rare genetic disorder.
Vascular EDS is estimated to affect between 1 in 50,000 to 1 in 200,000 people. It is caused by a gene mutation affecting a major protein, which causes weakness in vessel walls and hollow organs. The condition is characterised by aneurysms (a bulge in an artery), rupture of the bowel, and rupture of the womb during pregnancy. Managing and monitoring the condition improves outlook and requires specialists from different disciplines.
REDS4VEDS started in May 2015 and is hosted by Annabelle's Challenge, the UK’s leading charity for vascular EDS. It is now a global event with each year gaining momentum to raise awareness for those who are touched by vascular EDS.
The format for REDS4VEDS is free and simple to get involved with:
Participants are encouraged to engage through places of work, school, and colleges. You can wear as much or as little red as you want just so long as it’s red! The key to the success of the campaign is the hashtag #REDS4VEDS which helps pull the campaign together.
#REDS4VEDS images are shared across Twitter, Facebook and Instagram.