FRIDAY 18 MAY 2018
Put on the red and let the whole world know about Vascular EDS
REDS4VEDS DAY is a global campaign that takes place on the third Friday of May to help raise awareness of Vascular Ehlers-Danlos Syndrome (vascular EDS), a rare genetic condition.
Vascular EDS is life limiting, incurable, the prevalence is estimated as 1/50,000 to 1/200,000. At present life span for affected individuals is a median age of about 51 years (49 for males and 53 for females) but with a very large range from 10 years to 80 years.
REDS4VEDS started in May 2015 hosted by the UK’s leading charity for vascular EDS, Annabelle’s Challenge. Now a global campaign with each year gaining momentum of awareness for those who are touched by vascular EDS.
The format for REDS4VEDS is free and simple to get involved with:
Participants are encouraged to engage through places of work, school, and colleges. You can wear as much or as little red as you want just so long as it’s red! The key to the success of the campaign is the hashtag which helps pull the campaign together.
#REDS4VEDS images are shared across Twitter, Facebook and Instagram.